Tuesday, June 26, 2007

I'm normally a fairly relaxed, no panic sort of person but I have to admit that the sound of Trent thumping down the stairs followed by the words, "OMG I think there's something really wrong with yanna!!!" did incite something that could be called panic. It was that sort of icy feeling that washes over you followed by the sensation that your stomach has hit the floor and your heart is somewhere in the vicinity of your throat. It's highly unpleasant. But as a mom of 4, I have learned that no matter how anxious you feel, it's usually counter-productive to allow the kids to become aware of said emotions. I calmly turned around and noticed immediately on first glance that yes, there was something very wrong. Yanna's entire left side was completley paralyzed. Fighting the urge to panic suddenly becomes a little more difficult when you're wondering if your 4 year has had a stroke. We quickly got everyone loaded into the truck to make the 20 minute drive to the ER. Yanna, oddly was completely oblivious to the fact that her body had suddenly declared mutiny on her and kept asking (in slurred speech eerily reminiscent of T's grandma who is suffering from ALS) if we could "Go park!!!" and "Get icecream!!!" She also wondered if we could go to town and buy horses. The potential severity of the situation was completely lost on her and she was just happy to be going on a truck ride to town. It was kind of funny really. Once at the hospital we were seen by several doctors and nurses. During the time there she gradually regained all her senses/abilities and by the time her own pediatrician came down, she was attempting to swing tarzan like from the curtains. By the end of the morning it was determined that this just another complex migraine spell. Apparently complex migraines can also cause hemiparesis. I must say that for once I am completely relieved with a rather anti-climactic ending.

Friday, June 15, 2007

like trying to put a billy goat into a shopping bag

I should have know that it wasn't going to work. After a week of increasing seizure activity, we finally got a call from the EEG department. The lady on the phone suggested that they like to schedule the pre-school appointments for the afternoon because that is when they nap. Umm....right. I tried to explain to her that my daughter does not sleep and runs around like a weasel on speed until her battery dies around midnight. The receptionist did not believe me, brushed off my concerns with a "I'm sure it will be fine, we'll see what we can do." and scheduled the appointment for 2:00. We showed up at the hospital at 1:45 as suggested and proceeded to wait for 45 minutes. As the seconds ticked by you could see Yanna start to unravel. The novelty of sitting on each and every chair in the waiting area only lasts for so long. By the time we finally got called in I was peeling her off the walls and dragging out of the ornamental trees. It wasn't pretty. Once in the appropriate room, I was told that she would have to lay still for 25 minutes without moving. I think I might have laughed at the guy at this point. He, being the astute, EEG tech quickly realized that this really wasn't going to work. It might have been the fact that Yanna was trying to jump off the bed yelling "I NO SLEEP!!!!!" but I could be wrong. Needless to say, we had to come up with plan B. "We deal with "those types' of kids lots" he said (which didn't win him point in my books) "and it never works with "them". " He then apologized that they had even tried to set up the appointment for 2:00 at all. The plan B is that we reschedule for tuesday at 9 am, keep her up as late as possible and then wake her up at 4am. Hopefully by 9:00 she will be tired and more receptive to the mild sedative they are allowed to give. Again, I am skeptical as nothing 'mild" seems to knock her out. Not even the prescription hydroxyzine slows her down. The energizer bunny has nothing on my girl. It should be interesting to see how this works.

Saturday, June 9, 2007

"First day on your new legs?" The comment should have been harmelss enough but for some reason tonight it stung. I walked over to my little girl, helped her up and asked if she was ok. It was the same as so many times on so many days. "I ok" was her answer. The same as always. But she's not ok and it breaks my heart that I can't fix her, that I can't make things better. Some days she falls alot, some days not so much. We think that she's having simple partial seizures but until the EEG no one really knows. I see it in her eyes on the bad days. She'll hold my hand more, and refuse to go up or down the stairs without help. A fall down the hard wooden staircase taught her that lesson. It's interesting how she would quite happily run into traffic without pause but understands the danger of an innocuous set of stairs.