6/365

Nothing will motivate a person faster to clean the house than having a news station call and say that they'd like to cover your daughter's story.....in 2 hours.

I also feel the need to sheepishly admit that the corner of wall behind the cupboard has gone unpainted..... for over a year. I think maybe I should get on that.

5/365

I often wonder what goes on behind those big, dark eyes. It's been over a year since I last heard her speak. And, although she is not silent, our conversations have definitely changed. I wish for one moment that I could get inside her head, to know what she is thinking. There are days now where she barely makes a sound and it takes a great deal of effort to coax a response out of her. Days where her smiles are faint and slow to appear.

Although I do have to work harder.... moments like these become all the more magical.
( I may or may not have had to resort to chimpanzee noises to get this one.....no I will not demonstrate them for you.)

Lately Tatyanna has taken to getting up at 4:00 am. She thinks it's great fun and breaks into giggles when I tell her to go to sleep. Then, once I have had enough coffee that going back to bed is impossible, she does this:

1/365

I'm not sure exactly how this project will unfold....but I'm hoping that it will be an interesting journey!

These two have always had a special relationship. Despite his numerous interests and ever-increasing social network, the first thing Keirnan asks when he comes in the door is "How's Tatyanna....is she doing ok?". His concern for his little sister is obvious and I love watching them interact. When it would be easy to just sit and share space while playing the iphone, Keirnan gives a running commentary on what he's doing. He pauses to ask her questions and then carries on as though she answered. Tatyanna adores him. Sometimes all it takes is to say his name and her face will break out into the biggest smile. He's the one that would sit for hours with her, playing computer games that can only appeal to little girls and never fails to make her giggle with his repertoire of zombie noises. While a part of me grieves the loss of the relationship that will never get to exist between them, I can't help but marvel at the awesome bond that they have in spite of it all.