Wednesday, January 12, 2011




At some point, I know there will come a time to stop fighting this battle. A time when we feel the need to focus internally on our little girl and just let thing be. And while it will be an acceptance of sorts, we will never give up. Until a cure is found and no child has to endure the ravages of this brutal disease, the war will continue. But, that moment is not now. Today in an attempt to put a face to the endless letters that we have written (and apparently have never gotten past the various secretaries and aides) we attended an open house that the premier was hosting. Knowing that the media would there in abundance and that it wouldn't have been prudent for the leader of the beleaguered NDP party to completely ignore us, we hoped for a few moments of his time. While we don't expect anything to come of this meeting, I'm glad that we had the opportunity to have Tatyanna's story told and truly appreciate that he did take time out of his busy schedule to talk with us.


  1. Oh sweet girl...These just break my heart.

  2. Tatyanna is lucky to have incredible parents like you.

  3. I think it's the other way around....I'm a pretty lucky parent to have an incredible kid like Tatyanna. :)
    (actually, I got lucky 4 times over, because the other 3 are pretty awesome too)